top of page

DATA RESOURCES

Multiple data sources are available to AD-RCMAR Scientists and applicants, including:

Name of Dataset

​​​​

 

Hispanic Community Health Study/Study of Latinos (HCHS/SOL)

​​

​​

​​​Health and Retirement Study (HRS)

​​

​​

 

Rancho Bernardo Study of Healthy Aging (RBS)

​​

 

​

​Health and Aging Brain Study-Health Disparities (HABS-HD)

​​​​​​​

​

Hispanic – Established Populations for the Epidemiologic Study of the Elderly (H-EPESE)

​​

​

 

Alzheimer’s Disease Cooperative Study (ADCS)

​​​​​

​

​

UCSD Shiley-Marcos ADRC Clinical Core Database

​​​​​

​

​

National Alzheimer’s Coordinating Center (NACC)

​​​​​

​

​

All of Us Research Program

​​​

​​​​​​​

​

​​

Successful Aging Evaluation (SAGE)

​​​​

​​

​​​​

​

Neighborhood Atlas® ADI Use

Study Aims

​

Multi-center epidemiologic study in Hispanic/Latino populations to assess role of acculturation in prevalence and development of disease and to identify factors affecting health. 

​​

Longitudinal study of U.S. adults aged 50+ designed to inform retirement research

​​

​​Community-based cohort study of adults from the Rancho Bernardo suburb of San Diego, CA focused on cardiovascular disease, diabetes, bone disease, and cognitive function

​​​​

The HABS-HD seeks to understand the biological, social and environmental factors that impact brain aging among diverse communities
​​

Longitudinal study to provide estimates of physical health & mental health conditions, functional impairment and to compare to other populations
 

 

​AD Clinical Trials addressing treatments for cognitive and behavioral symptoms
​

​

​

​Multiple studies aiming to understand the causes, clinical features and treatments for MCI and ADRD

 

 

 

Facilitates collaborative research on ADRD
 

​​​​​

​​​

​​All of Us is building a diverse database that can inform thousands of studies on a variety of health conditions

​​

​

​Aims to investigate what factors (emotional, cognitive, genetic, social, physical, etc.) are associated with successful aging across the lifespan

​​​

 

​To share measures of neighborhood disadvantage with the public, including educational institutions, health systems,

Population​

​

 

 

16,415 diverse Hispanics/Latinos

​

​

​​​​

​

~20,000, nationally representative

​

​​​

 

2,500 predominantly Northern European-American and middle to upper-middle class

​

​​​​

​

1,000 Mexican-Americans, 1,000 non-Hispanic Whites, and 1,000 African-Americans from North Texas

 

​​​​​

3,050 Mexican-Americans aged 65+ years (8 waves of data) with an additional sample of 75+ years in wave 5.

​​​

​

 

 

6,500 people and 25,000 samples

​​

​

​

​​​​

 

Over 3,500 older adults, including 17% Latinos

​​​

​​

​

​

35,000+ older adults

​

​​​​

​

​

​

1,000,000 racially diverse people across the US

 

 

​​​​

​​​​​​

1,800 randomly selected, demographically representative, older adult residents of San Diego, CA

 

 

​​​​​

American Community Survey (ACS) 5-Year Data

Variables

​

Neurocognitive,sociocultural (e.g., acculturation), cardiometabolic (e.g., ECG), and multilayered –omics (e.g., whole genome sequences)
 

​

 

Multiple domains of health
 

​​

​​

Multiple domains of health and health status including cognitive, physical, sensory, and pulmonary function, biomarkers, and imaging.
 

​​

Neurocognitive testing, neuroimaging, and biomarkers
 

​​

​​

Multiple domains of physical, mental health, cognition, functional status, sociodemographics
 

​​​

​

​​

Biospecimens, brain imaging data, biochemical biomarkers, medications, MMSE, ADAS-cog, Clinical Dementia Rating Scale, Neuropsychiatric Inventory, CSF and serum data

​​

​

Multiple variables, including MINT, arterial stiffness, caregiver stress, medical, neurological and neuropsychological data, MRI, CSF data and quantitative MR brain imaging

​​

National standard clinical and neuropathological data (prospective and longitudinal) (Uniform Data Set, Neuropathology Data Set, Minimum Data Set)
 

​

EHR data, genomics, physical measurements and wearables, personal history, lifestyle, healthcare access and utilization, social determinants of health
 

​​​

Broad range of topics related to successful aging assessed by questionnaire, as well as genetic data
​

​

17 measures of social determinants of health across small,
population sensitive areas. It includes factors for the theoretical domains of income, education, employment, and housing quality.

bottom of page