The San Diego Alzheimer's Disease Resource Center for Minority Aging Research (AD-RCMAR)
A partnership between UC San Diego and San Diego State University
DATA RESOURCES
Multiple data sources are available to AD-RCMAR Scientists and applicants, including:
Name of Dataset
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Hispanic Community Health Study/Study of Latinos (HCHS/SOL)
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​​​Health and Retirement Study (HRS)
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Rancho Bernardo Study of Healthy Aging (RBS)
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​Health and Aging Brain Study-Health Disparities (HABS-HD)
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Hispanic – Established Populations for the Epidemiologic Study of the Elderly (H-EPESE)
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Alzheimer’s Disease Cooperative Study (ADCS)
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UCSD Shiley-Marcos ADRC Clinical Core Database
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National Alzheimer’s Coordinating Center (NACC)
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Successful Aging Evaluation (SAGE)
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Study Aims
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Multi-center epidemiologic study in Hispanic/Latino populations to assess role of acculturation in prevalence and development of disease and to identify factors affecting health.
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Longitudinal study of U.S. adults aged 50+ designed to inform retirement research
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​​Community-based cohort study of adults from the Rancho Bernardo suburb of San Diego, CA focused on cardiovascular disease, diabetes, bone disease, and cognitive function
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The HABS-HD seeks to understand the biological, social and environmental factors that impact brain aging among diverse communities
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Longitudinal study to provide estimates of physical health & mental health conditions, functional impairment and to compare to other populations
​AD Clinical Trials addressing treatments for cognitive and behavioral symptoms
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​Multiple studies aiming to understand the causes, clinical features and treatments for MCI and ADRD
Facilitates collaborative research on ADRD
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​​All of Us is building a diverse database that can inform thousands of studies on a variety of health conditions
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​Aims to investigate what factors (emotional, cognitive, genetic, social, physical, etc.) are associated with successful aging across the lifespan
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​To share measures of neighborhood disadvantage with the public, including educational institutions, health systems,
Population​
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16,415 diverse Hispanics/Latinos
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~20,000, nationally representative
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2,500 predominantly Northern European-American and middle to upper-middle class
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1,000 Mexican-Americans, 1,000 non-Hispanic Whites, and 1,000 African-Americans from North Texas
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3,050 Mexican-Americans aged 65+ years (8 waves of data) with an additional sample of 75+ years in wave 5.
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6,500 people and 25,000 samples
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Over 3,500 older adults, including 17% Latinos
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35,000+ older adults
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1,000,000 racially diverse people across the US
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1,800 randomly selected, demographically representative, older adult residents of San Diego, CA
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American Community Survey (ACS) 5-Year Data
Variables
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Neurocognitive,sociocultural (e.g., acculturation), cardiometabolic (e.g., ECG), and multilayered –omics (e.g., whole genome sequences)
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Multiple domains of health
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Multiple domains of health and health status including cognitive, physical, sensory, and pulmonary function, biomarkers, and imaging.
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Neurocognitive testing, neuroimaging, and biomarkers
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Multiple domains of physical, mental health, cognition, functional status, sociodemographics
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Biospecimens, brain imaging data, biochemical biomarkers, medications, MMSE, ADAS-cog, Clinical Dementia Rating Scale, Neuropsychiatric Inventory, CSF and serum data
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Multiple variables, including MINT, arterial stiffness, caregiver stress, medical, neurological and neuropsychological data, MRI, CSF data and quantitative MR brain imaging
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National standard clinical and neuropathological data (prospective and longitudinal) (Uniform Data Set, Neuropathology Data Set, Minimum Data Set)
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EHR data, genomics, physical measurements and wearables, personal history, lifestyle, healthcare access and utilization, social determinants of health
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Broad range of topics related to successful aging assessed by questionnaire, as well as genetic data
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17 measures of social determinants of health across small,
population sensitive areas. It includes factors for the theoretical domains of income, education, employment, and housing quality.